NIMH Conference 2009

Title: Ethics and Community Engagement in Mental Health Research
Year 2 of the Conference Series, Best Practices in Mental Health Research
Funded by the National Institute of Mental Health

Date: June 3, 2009

Time: 8am-12:45pm

Conference Materials:

Related Articles:

Using Formative Research to Develop a Context-Specific Approach to Informed Consent for Clinical Trials

Purpose and Benefits of Early Phase Cancer Trials: What do Oncologists Say? What do Patients Hear?

Balancing Power Among Academic and Community Partners: The Case of El Proyecto Bienestar

Creating Community-Based Participatory Research in a Diverse Community: A Case Study

Cognitive Interviewing as a Tool for Improving the Informed Consent Process

Speaker Powerpoints:

DuBois, Ethics and Community Engagement Intro

Fisher, Participant Perspectives on Research Ethics

Sieber, Models of Community Engagement in Research ethics

Hoop, Setting the Agenda for Genetics research in Schizophrenia

Cottler, Community Engagement in Psychiatric Epidemiology

Annotated Bibliography

 

Schedule
8:00 Registration and Continental Breakfast
8:30    Welcome and Introduction. James M. DuBois, PhD, DSc

Theme 1: Research as a Tool for Giving Participants a Voice in Research Ethics
8:45    “Therapeutic Realism, Mistrust, and Misconception: Street Drug Users' Ethical Evaluations of
Addiction Clinical Trials” Celia Fisher, PhD
9:15    “Harmonizing Volunteer Views with the Goals of Research,” Laura Roberts, MD
9:45    “Setting the Genetic Research Agenda for Schizophrenia: View and Preferences of Patients and
Family Members,” Jinger Hoop, MD, MFA
10:15    Break

Theme 2: Community Engagement in Mental Health Research
10:30    “Community Engagement in Psychiatric Epidemiology: The Approach of a Research Group and a
NIH CTSA Center,” Linda Cottler, PhD, MPH
11:00    “Emerging Models of Community Engagement in Research Ethics” Joan Sieber, PhD

Theme 3: Dialogues on Community Engagement in Mental Health Research
11:30    Commentary on Papers: Jean Campbell, PhD; and
Brendolyn Bailey-Burch, M.S., MACSAPP
12:15    All-Speaker Panel Discussion with Audience Participants
12:45    Program Evaluation and Conclusion


About the Presenters

Jean Campbell, Ph.D
Research Associate Professor, Missouri Institute of Mental Health

Linda B. Cottler, Ph.D., MPH
Professor of Epidemiology, Department of Psychiatry at Washington University School of  Medicine
Director of the EPRG, the Center for Community Based Research
Master of Psychiatric Epidemiology Program

Brendolyn Bailey-Burch, M.S., MACSAPP
Research Associate, Missouri Institute of Mental Health

James DuBois, PhD
Huber Mader Chair of Health Care Ethics, Department Chair and Bander Center Director, Saint Louis University

Celia B. Fisher, Ph.D.
Marie Ward Doty Professor of Psychology, Fordham University
Director of the Center for Ethics Education

Jinger G. Hoop, M.D., MFA
Assistant Professor, Department of Psychiatry and Behavioral Sciences at Medical College of Wisconsin in Milwaukee
Assistant Director of the Empirical Ethics Group

Laura Roberts, M.D.
Charles E. Kubly Professor, Medical College of Wisconsin
Chairman of the Department of Psychiatry & Behavioral Medicine
Director of the Empirical Ethics Group

Joan E. Sieber, Ph.D.
Professor Emerita, California State University, East Bay



Sponsors
  • The National Institute of Mental Health
  • Saint Louis University’s
    • Department of Health Care Ethics
    • Department of Neurology and Psychiatry
    • Graduate School
  • Missouri Institute of Mental Health
  • The Institute for Clinical and Translational Sciences at Washington University in St. Louis